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I'm 36!
jeudi 19 novembre 2015
Holy Cow! I'm 36 today, folks! PFTs 96%. STILL GOING! CF WON'T TAKE ME DOWN JUST YET!
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I'm 36!
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"Normal" for CF kids
000 Posts!
1
A conversation with my non CF'er
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ABPA + Lung infection = pulse dose of steroids + IV antibiotics..
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Community-based lifestyle programs can also improve health-related quality of life
Considering 2nd adoption
constant sinus drainage after lung transplant
Contaminated devices used during open heart surgery could put patients at risk for infections
Could it be CF in my 14 yo?
CrossFit
Crowdfunding for Cystic Fibrosis and Other Pediatric Rare Diseases Research Projects
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Cystic Fibrosis in a Physical Form
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Delta F508 + D797A
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Do you change neb cups?
Do you know this service?
Double Transplant for CF?
Dumped because I have CF...
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eRapid and Bubbles
Error message hill rom vest
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Freebies.........
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Good Probiotic?
GP referral to weight loss programmes effective in tackling obesity
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has the system been down????
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Help I Need Advice ASAP!
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Help Please: 50 psi recommendations
Help with constipation
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hill rom vest
Hill Rom Vest 105 for sale
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Hip Replacement
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How do I delete a post?
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How to
HPV (human papillomavirus)
Husband in the hospital for the first time at age 30.
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I'm 36!
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Instagram
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ISO hillrom vest 104
IV ball options?
job
Just discovered an easy high fat product
Just one day off
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Laser Hair Removal??
Lifestyle modification programs to prevent diabetes improve cardio-metabolic profiles
Lifetime of undiagnosed GI symptoms + asthma and waiting for genetic testing
links to live updates for NACFC?
Liquid
long term hospital stay
long term linezolid
Looking for a little more information.
Looking for a thread started by a dad
Looking for CF people interested in helping with an artwork!
Looking for more information.
Looking for Stock photos for fundraising
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Losing the Battle on Sinus Infections
Lung Function
Maintaining your Portable Generator
Manganese-based antioxidant complex of Deinococcus protects mice from gamma radiation
may have some benefits for losing weight
Medicaid
Medicaid criteria for Orkambi
Mindfulness-based eating solution may help people adopt healthy eating habits without giving up food
Morbidly obese individuals more likely to experience heart failure
More exciting research to fix cftr
More next generation correctors coming
Moving to another state
Mrsa
My baby is here!
My project
Nanny with Special Needs Experience Available
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Nasonex on back order?
NDSU investigator receives $3.7 million grant for bariatric surgery research
Nebulized Colistin & Join Pain?
Need advice from more experienced parents
Need ideas
Negative sweat test but lots of mucus
New
New ABT approach results in greater weight loss than gold standard treatment
New CF vitamin DEKAs
New collaboration for gene splicing
New drug treatment could reduce body weight in obese patients with rare genetic disorder
New model predicts that prevalence of obesity among Australian adults may significantly increase by 2025
New Orleans Adult CF Center
New quality improvement program reduces hospital readmission rates for weight-loss surgery patients
New recommendations offer evidence-based strategies to help teenagers avoid obesity and eating disorders
New research examines p-synephrine's role in burning fat during rest and exercise
New Site Coming Soon
New Sodium Chloride Clinical Trial
New study looks at better ways to treat obesity in rural areas
new survey finds
nonsense w-1143
North America cf conference starts tomorrow
Not absorbing pills
Novartis gets three FDA approvals for expanded use of biologic drug to treat rare autoinflammatory diseases
NSAIDs inhibit ovulation
NYIT clinician shares own story and tips for successful weight loss
Obamacare and Orkambi
Online behavioural intervention provides long-term
Opinions on Florida and living with CF; Doctors
optometrists
or skipping it
Order cheaply pills for ED no preparation
original carrier diagnosis but should we retest?
Orkambi and fat
Orkambi and Pregnancy
Orkambi and Rash?
Orkambi drug interactions that were not listed
Orkambi Journey with 19 y/o Allan Diagnosed at 4 months
Orkambi Success
Orkambi works even if FEV doesn't improve
Overanalyzing Buggers
Own your own health records?
Paleo diet may be beneficial for heart health
Pancreatic Issues and Orkambi
Pancreatic sufficient
Pancreatic Sufficient and Kalydeco
PCD panel results....more testing
People dentists
Pertzye?
Pilots with CF
Please help! Possibe CF? Sweat test needed after rectal prolapse in 2 1/2 year old
Please help!!!
Please Take A Moment To Read
Port infections--probiotics may cause
Possibility to prevent meconium ileus while pregnant
possible iodine allergy connection?
practical tool may help doctors to easily diagnose cachexia in cancer patients
Printer
Pseudomonas Aeruginosa Erradicated
Question about Cultures - When is it concerning?
question about sweat test results
Qvar 1 or 2 a day?
R117H
R117h + ivs8-5t/78/9t/7t
Really bored 0.0
regular aerobic exercise boosts testosterone levels in overweight and obese men
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Report reveals staggering cost of undiagnosed obstructive sleep apnea in the U.S.
Research findings underscore striking heterogeneity of depression
Research highlights need to improve post mortem techniques to better detect cause of stillbirth
research shows
Researchers develop new strategy to immunize against microbes that cause foodborne illness
Researchers report safety of laparoscopic sleeve gastrectomy from nationwide bariatric registry
Researchers to investigate similarities between Crohn's and Johne's disease that affects cattle
Residual Functions Mutations going to be on label for Kalydeco
Respirtech jacket
Review highlights potentially toxic effects of herbal and dietary supplements on the liver
Sanford-NDSU Collaborative Seed Grant Program provides funding for three health research projects
say researchers
scared for my future
scholarship info
Scientists find way to predict weight loss success based on the brain volume
Second generation correctors + df508 heteros updates
Secondary Insurance Reputations
Seeking vest model 105
Selective manipulation of enzyme can stop cancer cachexia
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should I push for testing?
Simple text messages can help teenagers lose weight
Singing and lung disease
Smartvest SQL by Electromed inc. for sale (machine and cord only)
So confused....no diagnosis...stop looking?
Some cf sweetness
spacer brand
Spending time with heavier pals may undercut success at weight loss
strange question about chairs for vest users
Study assesses effects of dehydration on cricket-specific skills
study finds
Study finds new therapeutic target to prevent progression of rare blood cancer
Study finds smartphones not useful in helping adolescents maintain weight loss
Study measures amount of artificial sweeteners in the blood stream of adults and kids
Study provides insight into how weight-loss drug acts in the brain
Study reveals long-term survival benefits of gastric bypass surgery in patients with severe obesity
study shows
Study shows diabetes drug ineffective in improving condition of patients with advanced heart failure
Study shows link between RYGB surgery in obese patients and sustained long-term weight loss
Study shows striking differences in white matter volume between obese individuals and lean people
Stupid spirometer question
Styrofoam Rx boxes
Super dry cough at night
Support for genetic testing with negative sweat test
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sustainable ways to lose weight
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tablet or effervescent Zantac for kids?
Tell me about the vibralung?
terrible adhesive allergy
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the recalls we never learn about!
The vest clearance system for sale
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Toothpaste brands?
Transcript from FDA Advisory Committee Meeting for Orcambi
Traveling Abroad
tri verus quad flu shot
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United health care grant (helps with expenses)
Vanderbilt Pulmonary clinic in Tennesse anyone use them
Venting
Vertex Conference Call
Vertex Conference Live Now--triple combo gets up to 75% function
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Vests for sale for Hillrom
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Welcome to my New Granddaughter
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Why was my post deleted?
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Wonder if anyone else has heard this
Working on disability - SSDI
Workplace weight management program linked to lower healthcare costs
Wwyd
You can also see the family doctor
you should make sure
zythromax long term?
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Please help! Possibe CF? Sweat test needed after r...
hill rom vest
Cayston
job
The first thing you need to do in terms of researc...
Cayston
nasal polyps and deviated septum
Considering 2nd adoption
anxiety about hemoptysis
A New Home for CysticFibrosis.com!
New CF vitamin DEKAs
ABPA + Lung infection = pulse dose of steroids + I...
Double Transplant for CF?
Maintaining your Portable Generator
Nebulized Colistin & Join Pain?
zythromax long term?
I'm 36!
Wearing masks in public may help wearer from getti...
Working on disability - SSDI
Fascinating back story on vertexs step into cff
NSAIDs inhibit ovulation
long term linezolid
the recalls we never learn about!
Pseudomonas Aeruginosa Erradicated
Please help!!!
aquADEKS on Ebay
Cystic fibrosis smartvest airway clearence vest ma...
Surviving on Disabilty
Smartvest SQL by Electromed inc. for sale (machine...
Interesting new clinical trial for 661/Kalydeco
Dumped because I have CF...
body image
How do I delete a post?
Depression & anxiety (a new way to cope)
Daughter has PCD- Primary Ciliary Dyskinesia
New Sodium Chloride Clinical Trial
I need to find someone who did a full gene scan be...
terrible adhesive allergy, possible iodine allergy...
What is your dream hospital?
Anyone go to Tulane in New Orleans?
I had an idea.. fitness wearable to help CF in all...
If you are lucky enough to have health insurance
People dentists, optometrists, and have direct access
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