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vendredi 16 octobre 2015
Hi, I'm new here! I love connecting with CFrs on Instagram and was wondering if anyone would want to share their username and connect with me. Mine's Chelles_xoxo
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"Normal" for CF kids
000 Posts!
1
A conversation with my non CF'er
A New Home for CysticFibrosis.com!
A RespirTech Incourage System - For Sale - Northern New Jersey
ABPA + Lung infection = pulse dose of steroids + IV antibiotics..
Achromobacter denitrificans
Activation of chemical with ER-β may help reduce obesity by converting white fat to brown fat
Afflovest?
Allergic reactions to Antibotics
Americans take obesity as seriously as cancer
Amikacin etc have failed?
An upgrade to cysticfibrosis.com is being launched!
and have direct access
Another icing on the cake of chiropractic treatment
anxiety about hemoptysis
Anxiety on Orkambi?
Anyone go to Tulane in New Orleans?
Anyone knows?
Anyone willing to do this?
aquADEKS on Ebay
Asthama and PFT?
back to upmc
Be in my book!
Best nebulizer recommended for Tobi and Pulmozyme
better QOL
Blood pressure hormone system important for cardiovascular health can promote obesity
body image
Brain activity and response to food cues in severely obese women differ from lean counterparts
Brisk walking may be more effective than vigorous jogging for patients with pre-diabetes
Bronchial dialator question
Bronchoscopy Question
but losing weight
Buy reduced generics no medicament
Can someone help with next steps...scared mom here
carrier with symptoms
Cayston
Cayston's Horrible Packaging
CF Bowel Obstruction Study
CF Foundation attendance policy
CF or asthama?
Cfpaf
CFTR nonsense w-1204
Chest pain when breathing deep and coughing
Cincinnati Research Opportunity - earn $200
cleaning tips
Clinics
Community-based lifestyle programs can also improve health-related quality of life
Considering 2nd adoption
constant sinus drainage after lung transplant
Contaminated devices used during open heart surgery could put patients at risk for infections
Could it be CF in my 14 yo?
CrossFit
Crowdfunding for Cystic Fibrosis and Other Pediatric Rare Diseases Research Projects
Curious what's everyone's hospital like?
Customizing weight management program for individual personalities may increase success rates
Cystic Fibrosis Awareness Campaign
Cystic Fibrosis in a Physical Form
Cystic fibrosis smartvest airway clearence vest machine
Cystic Fibrosis Tag
daily activities for folks that have PFTs in 30's and 40's?
Daughter has PCD- Primary Ciliary Dyskinesia
Delta F508 + D797A
Depression & anxiety (a new way to cope)
Depression CF related
Diabetes diagnosis linked to cancer development?
Diagnosed at 36
Dieting
DIOS prevention options
Disrupted circadian rhythm may not help achieve maximum weight loss after bariatric surgery
Do you change neb cups?
Do you know this service?
Double Transplant for CF?
Dumped because I have CF...
Eating a very early dinner
Educate me about Pseudonomas please
Elastase Test--- with or without enzymes??
eRapid and Bubbles
Error message hill rom vest
etc.
exercise or combination of both equally effective in improving cardiovascular health
Family health care workers involved in ongoing
Fascinating back story on vertexs step into cff
First step for EU access for Orcambi; 2-5 for gating for Kalydeco
Fish oil
Food intolerance testing: an interview with Dr Gill Hart
For California Residents - GHPP and Medicare Questions
For people my age
For those struggling with m abscesses
Frailty screening could help improve outcomes after older surgery patients
Freebies
Freebies.........
Gas-filled balloon capsules provide new low risk treatment option for patients with obesity
gene c.3140-26a
Getting fat on Orkambi
Giving newborn salt
Giving Tuesday!
GlobalGenes.org in Huntingdon Beach California
Good news
Good Probiotic?
GP referral to weight loss programmes effective in tackling obesity
Groundbreaking research findings could lead to potential new treatments for Crohn’s disease
Haloterapy Opinions and Haloterapy Devices
has the system been down????
Have you stopped Orkambi because of side effects?
Help I Need Advice ASAP!
Help in testing
Help needed with info about CF
Help Please: 50 psi recommendations
Help with constipation
High-protein diet eliminates metabolic benefits of weight loss in obese women
High-protein diets may help prevent chronic diseases by reducing liver fat
Higher nut intake linked to lower levels of inflammatory biomarkers
Highest FEV1 ever?
hill rom vest
Hill Rom Vest 105 for sale
Hill-rom vest for sale
Hip Replacement
Homeschooling: Original Sin versus Environment...Now I know!
How do I delete a post?
How do you know when you need IV antibiotics?
How Does Forskolin Work for Weight Loss?
How positive have the tests been?
How to
HPV (human papillomavirus)
Husband in the hospital for the first time at age 30.
I had an idea.. fitness wearable to help CF in all ways
I need some help with a uni artwork!
I need to find someone who did a full gene scan before 2006 to find their mutation
I need your help!
I'm 36!
If you are lucky enough to have health insurance
In memory of the four she lost...
In Need o Help Right Away
Increased production of feeling full hormone linked to reduced hunger and food intake in elderly people
Instagram
Insurance for Orkambi (GA)
Interesting new clinical trial for 661/Kalydeco
Is there anything against Abscessus when Tygacil
ISO hillrom vest 104
IV ball options?
job
Just discovered an easy high fat product
Just one day off
Kent State researcher receives NIH grant to study potential of thermogenesis for inducing weight loss
Laser Hair Removal??
Lifestyle modification programs to prevent diabetes improve cardio-metabolic profiles
Lifetime of undiagnosed GI symptoms + asthma and waiting for genetic testing
links to live updates for NACFC?
Liquid
long term hospital stay
long term linezolid
Looking for a little more information.
Looking for a thread started by a dad
Looking for CF people interested in helping with an artwork!
Looking for more information.
Looking for Stock photos for fundraising
lose weight
Losing the Battle on Sinus Infections
Lung Function
Maintaining your Portable Generator
Manganese-based antioxidant complex of Deinococcus protects mice from gamma radiation
may have some benefits for losing weight
Medicaid
Medicaid criteria for Orkambi
Mindfulness-based eating solution may help people adopt healthy eating habits without giving up food
Morbidly obese individuals more likely to experience heart failure
More exciting research to fix cftr
More next generation correctors coming
Moving to another state
Mrsa
My baby is here!
My project
Nanny with Special Needs Experience Available
nasal polyps and deviated septum
Nasonex on back order?
NDSU investigator receives $3.7 million grant for bariatric surgery research
Nebulized Colistin & Join Pain?
Need advice from more experienced parents
Need ideas
Negative sweat test but lots of mucus
New
New ABT approach results in greater weight loss than gold standard treatment
New CF vitamin DEKAs
New collaboration for gene splicing
New drug treatment could reduce body weight in obese patients with rare genetic disorder
New model predicts that prevalence of obesity among Australian adults may significantly increase by 2025
New Orleans Adult CF Center
New quality improvement program reduces hospital readmission rates for weight-loss surgery patients
New recommendations offer evidence-based strategies to help teenagers avoid obesity and eating disorders
New research examines p-synephrine's role in burning fat during rest and exercise
New Site Coming Soon
New Sodium Chloride Clinical Trial
New study looks at better ways to treat obesity in rural areas
new survey finds
nonsense w-1143
North America cf conference starts tomorrow
Not absorbing pills
Novartis gets three FDA approvals for expanded use of biologic drug to treat rare autoinflammatory diseases
NSAIDs inhibit ovulation
NYIT clinician shares own story and tips for successful weight loss
Obamacare and Orkambi
Online behavioural intervention provides long-term
Opinions on Florida and living with CF; Doctors
optometrists
or skipping it
Order cheaply pills for ED no preparation
original carrier diagnosis but should we retest?
Orkambi and fat
Orkambi and Pregnancy
Orkambi and Rash?
Orkambi drug interactions that were not listed
Orkambi Journey with 19 y/o Allan Diagnosed at 4 months
Orkambi Success
Orkambi works even if FEV doesn't improve
Overanalyzing Buggers
Own your own health records?
Paleo diet may be beneficial for heart health
Pancreatic Issues and Orkambi
Pancreatic sufficient
Pancreatic Sufficient and Kalydeco
PCD panel results....more testing
People dentists
Pertzye?
Pilots with CF
Please help! Possibe CF? Sweat test needed after rectal prolapse in 2 1/2 year old
Please help!!!
Please Take A Moment To Read
Port infections--probiotics may cause
Possibility to prevent meconium ileus while pregnant
possible iodine allergy connection?
practical tool may help doctors to easily diagnose cachexia in cancer patients
Printer
Pseudomonas Aeruginosa Erradicated
Question about Cultures - When is it concerning?
question about sweat test results
Qvar 1 or 2 a day?
R117H
R117h + ivs8-5t/78/9t/7t
Really bored 0.0
regular aerobic exercise boosts testosterone levels in overweight and obese men
Regular use of activity tracker or pedometer does not appear to improve health
Report reveals staggering cost of undiagnosed obstructive sleep apnea in the U.S.
Research findings underscore striking heterogeneity of depression
Research highlights need to improve post mortem techniques to better detect cause of stillbirth
research shows
Researchers develop new strategy to immunize against microbes that cause foodborne illness
Researchers report safety of laparoscopic sleeve gastrectomy from nationwide bariatric registry
Researchers to investigate similarities between Crohn's and Johne's disease that affects cattle
Residual Functions Mutations going to be on label for Kalydeco
Respirtech jacket
Review highlights potentially toxic effects of herbal and dietary supplements on the liver
Sanford-NDSU Collaborative Seed Grant Program provides funding for three health research projects
say researchers
scared for my future
scholarship info
Scientists find way to predict weight loss success based on the brain volume
Second generation correctors + df508 heteros updates
Secondary Insurance Reputations
Seeking vest model 105
Selective manipulation of enzyme can stop cancer cachexia
Shorter and longer reproductive durations can raise risk of type 2 diabetes in postmenopausal women
should I push for testing?
Simple text messages can help teenagers lose weight
Singing and lung disease
Smartvest SQL by Electromed inc. for sale (machine and cord only)
So confused....no diagnosis...stop looking?
Some cf sweetness
spacer brand
Spending time with heavier pals may undercut success at weight loss
strange question about chairs for vest users
Study assesses effects of dehydration on cricket-specific skills
study finds
Study finds new therapeutic target to prevent progression of rare blood cancer
Study finds smartphones not useful in helping adolescents maintain weight loss
Study measures amount of artificial sweeteners in the blood stream of adults and kids
Study provides insight into how weight-loss drug acts in the brain
Study reveals long-term survival benefits of gastric bypass surgery in patients with severe obesity
study shows
Study shows diabetes drug ineffective in improving condition of patients with advanced heart failure
Study shows link between RYGB surgery in obese patients and sustained long-term weight loss
Study shows striking differences in white matter volume between obese individuals and lean people
Stupid spirometer question
Styrofoam Rx boxes
Super dry cough at night
Support for genetic testing with negative sweat test
Surviving on Disabilty
sustainable ways to lose weight
T-cell technology could be used to treat ovarian tumors with no adverse effects
tablet or effervescent Zantac for kids?
Tell me about the vibralung?
terrible adhesive allergy
Testing lung health online: an interview with Professor Stephen Holgate
The first thing you need to do in terms of research doctor
the recalls we never learn about!
The vest clearance system for sale
There are doctors with specialization
Toothpaste brands?
Transcript from FDA Advisory Committee Meeting for Orcambi
Traveling Abroad
tri verus quad flu shot
Trigger: amnio diagnosed cf positive
Triple therapy approach helps Type 1 diabetes patients improve blood sugar control
Trying to figure out how accurate the sweat test is before tomorrow
TSRI scientists identify new therapeutic target to combat obesity and type 2 diabetes
UC researchers highlight impact of diet on migraines
United health care grant (helps with expenses)
Vanderbilt Pulmonary clinic in Tennesse anyone use them
Venting
Vertex Conference Call
Vertex Conference Live Now--triple combo gets up to 75% function
Very sad/strange story here in San Antonio
Vests for sale for Hillrom
Vibralung..where can I find it? And for how much?
Vigorous
Wearing masks in public may help wearer from getting flu
Weight Lifting
Welcome to my New Granddaughter
wet stretchable bandages
What is your dream hospital?
Where to find "generic" Kalydeco
Which is the best Ambry Genzyme quest or someone else?
Why was my post deleted?
Women have lower risk of developing heart disease after bariatric surgery than men
Wonder if anyone else has heard this
Working on disability - SSDI
Workplace weight management program linked to lower healthcare costs
Wwyd
You can also see the family doctor
you should make sure
zythromax long term?
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gene c.3140-26a
For those struggling with m abscesses
Vertex Conference Call
Pancreatic sufficient, but losing weight
Wwyd
gene c.3140-26a
Toothpaste brands?
CFTR nonsense w-1204, nonsense w-1143
Opinions on Florida and living with CF; Doctors, C...
Husband in the hospital for the first time at age 30.
Getting fat on Orkambi
New collaboration for gene splicing
Homeschooling: Original Sin versus Environment...N...
How positive have the tests been?
Hill-rom vest for sale
Curious what's everyone's hospital like?
Help I Need Advice ASAP!
Pilots with CF
Could it be CF in my 14 yo?
Fish oil
Qvar 1 or 2 a day?
IV ball options?
question about sweat test results
Giving newborn salt
Depression CF related
Instagram
New Orleans Adult CF Center
Mrsa
Nasonex on back order?
More next generation correctors coming
Good news
Trying to figure out how accurate the sweat test i...
Allergic reactions to Antibotics
New Site Coming Soon
DIOS prevention options
Anxiety on Orkambi?
has the system been down????
Pertzye?
Super dry cough at night
Orkambi works even if FEV doesn't improve
back to upmc
Vertex Conference Live Now--triple combo gets up t...
A RespirTech Incourage System - For Sale - Norther...
links to live updates for NACFC?
Second generation correctors + df508 heteros updates
Venting
Residual Functions Mutations going to be on label ...
Hip Replacement
Vanderbilt Pulmonary clinic in Tennesse anyone use...
Be in my book!
My project
I need your help!
North America cf conference starts tomorrow
scared for my future
Orkambi drug interactions that were not listed
You can also see the family doctor, you should mak...
HPV (human papillomavirus)
Haloterapy Opinions and Haloterapy Devices
Another icing on the cake of chiropractic treatment
Have you stopped Orkambi because of side effects?
Is there anything against Abscessus when Tygacil, ...
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